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Together to improve the lives of people living with sickle cell disease in the Central African Republic

DrepaNOCare works to reduce the suffering of sickle cell patients through awareness campaigns, medical and psychosocial support programs.
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Who are we?

DrépaNOCare Solidarité is an association based in France, dedicated to the fight against sickle cell anemia. It works to improve the quality of life of patients through awareness-raising, training and support actions, particularly in the Central African Republic.

  • Vision

To build a future where every person living with sickle cell disease benefits from comprehensive, accessible, humane and innovative care.

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Sickle Cell Disease In Car

Sickle cell disease is a real public health problem in the Central African Republic.

Findings

  • High Prevalence of The Disease
  • Limited Access to Specialized Care
  • Lack of Suitable Structures
  • Poor Psychosocial Care
  • Lack of Awareness

Issues

  • Reducing Disease-Related Mortality
  • Improving Patients Quality of Life
  • Strengthening Health Care Systems
  • Raising Awareness

Our Programs and Impact
Awareness and IEC Campaigns
  • Community Forums
  • School and Neighborhood Workshops
  • Impact: X People Reached Per Year
Training and Capacity Building
  • Training community animators and patient resources
  • Organizing practical workshops on sickle cell disease
  • Impact: X professionals and volunteers trained
Patient Care and Support
  • Distribution of medical kits and medication
  • Psychosocial and family support
  • Impact: improved medical follow-up for X patients
Pilot Projects and Innovative Initiatives
  • Development of specific programs (e.g., Therapeutic Patient Education – TPE)
  • Impact: X communities benefited

Activities in Car

DrépaNOCare carries out several concrete actions in the field

Community Awareness Campaigns
Patient and Family Education
Distribution of medicines and support kits
Organization of workshops and training
Capacity building of local actors
Psychosocial support for patients

Crew And Cast

Landry Wilfried GOTTO MOKOLONGO is an emblematic figure and a dedicated advocate in the fight against sickle cell disease, a genetic disorder that affects millions of people worldwide. As a sickle cell patient himself, he brings a unique perspective and a deep understanding of the daily challenges and unmet needs faced by this community.
As the founder of DREPANOCARE, Mr. GOTTO MOKOLONGO launched a movement aimed at raising awareness among the public and policymakers about the impact of sickle cell disease, while working to improve medical care, prevent complications, and reduce inequalities. DREPANOCARE has established itself as a leading advocacy and awareness organization, particularly in the Central African Republic, where it played a key role in the development of the national sickle cell disease control plan in collaboration with the Ministry of Health and Population.
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Projects Carried Out And Carried Out

Pilot Program: Integrating CBT in FTE

This innovative program aims to integrate Cognitive Behavioral Therapy (CBT) into Therapeutic Patient Education (TPE) to improve the psychosocial care of sickle cell patients.

Objectives

  • Helping patients better manage pain
  • Reduce anxiety and stress
  • Promoting autonomy
  • Improve adherence to treatments

Innovation

  • Combined medical and psychological approach
  • Patient Partner Involvement
  • Collaboration RCA – France
  • Repeatable model at scale

Expected results

  • Improved patient well-being
  • Reduction of stress-related crises
  • Building adaptive capacity

Patient Testimonials

Emergency – Help a Patient Now

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